“A Child Learns About MS,” tells the story of a young girl who sees her mother with some frightening health problems and learns she has Multiple Sclerosis but she will not die from it.
This book is a compassionate, accessible and easy-to-understand account of symptoms, search for help, diagnosis, and adaptation to this heart-wrenching disease. Amy fears the worst, which is common when one is confronted by the unknown.
Her best friend, Kayla, doesn’t quite understand why Amy is so worried. Amy’s older sister, Kelly is concerned and does her best to help, while her older brother, Tony, tries to deny the whole situation. Information is the key to allaying much of her fear along with understanding from parents, adult friends, and her older sister.
In the United States today, there are approximately 400,000 people with Multiple Sclerosis (MS)—with 200 more people diagnosed every week. Worldwide, MS is thought to affect more than 2.5 million people.
This book is about MS, but it’s also about much more. Families are challenged every day by disease, accidents, financial woes, drug abuse, and just about any imaginable disaster.
The underlying message is finding help, especially through information. Information can be obtained from many different kinds of reputable sources.
Health care professionals, financial professionals, and social workers can be helpful. The internet is a vast resource if used wisely. Libraries contain vast amounts of information and resources to help with almost any problem.
Mom’s Story attempts to put into words the emotions of a child, or anyone, who is living with or close to someone who is experiencing the symptoms of MS.
The symptoms can be frightening and frustrating or they might be subtle or missed completely. Some people don’t know they have MS because the symptoms are mild and only cause a little inconvenience from time to time. These people usually chalk these symptoms up to a cold, the flu or just a stiff muscle.
Physicians sometimes don’t diagnose the disease at this level because the symptoms are mild, infrequent, and seem to exhibit no set pattern. It is only when symptoms have a repeated effect on the patient’s quality of life or they last for an extended period of time that physicians begin to look for an underlying cause.
With the coming of the MRI, MS diagnosis has become more reliable. Though there are other demyelinating diseases, MS can be diagnosed with some certainty if other known symptoms and signs are presented.
Other tests, including evoked potentials, lumbar puncture, and visual tests, are also given. MS diagnosis is most often arrived at by a process of elimination because several other maladies mimic MS or Vice Versa.
This book is not meant to assist in the diagnosis of the disease or substitute for consultation with a physician. If anything, this book can help families be aware of the possible emotional toll the disease can take on family members and some of the ways it will manifest itself.
It provides an up-to-date list of resources on MS that can supplement but not replace information from a health care professional.
Anyone with MS or who knows someone with MS will want this book. Readers of all ages will find a compelling story of a family forced to confront this chronic disease for which there is no cure.
They will gain an understanding of MS, who gets it, how the disease is diagnosed, the various forms of MS, and listings of material and organizations available to assist families in the fight against MS.
Intriguing article. I’ll put your book on my short list!
Thank you for sharing this intense introduction.
We are all faced with something but when we see out parents faced with things we just can’t cope. It was the opposite for me, I was in your mother’s spot, with them watching me. At least I thought they were watching, but it was probably all in my head. But they had to learn during the time I was in good shape, things could have changed. And they did see the change in the positive direction. I know both ends of this story since I watched my mother, and never thought my own children would watch me. Sincerely, Nancy
Dear Mary, thank you for lifting the veil of this disease. I can now relate to it much better. Thank you for this in-depth overview.
This article makes me realize what MS is about. When one is not afflicted by this disease nor has any direct reference to it through friends or close acquaintances it is hard to get an idea. But that probably goes for any illness…
Like my commenting predecessor, I am in a position now to relate to this (your) affliction. Thank you for sharing and I wish you strength.
I haven’t seen other publications from you in this magazine yet. Any more to follow?
Yes, MS constitutes a truly debilitating disease! YOU indeed remain a most courageous woman as evidenced from this article! Thank you for so thoughtfully imparting your experience. All the highest of blessings always. Michael